I am conducting semi-structured interviews with Canadian human research ethics board officers or chairs. If you are interested, contact the principal investigator Andrea Szwajcer: andrea.szwajcer@umanitoba.ca or call/text her at 431-336-9633.
Data management plans (DMPs) are a complex confluence of discipline and institution data norms and processes, multi- and varied regulatory and policy expectations, and social and cultural sovereignties across the research lifecycle. A research ethics boards’ (REB) regulatory function is to protect all human participants and provide a long-term view of the research proposal. Traditionally they have navigated data management issues with a combination of local practice, and institutional oversight; expectations are largely conveyed by the experience of the ethics submission process. DMPs has illuminated institutional policy gaps and non-encoded local data management practices, presenting challenges to researchers, REB members and officers, and supporting institutional units. Such challenges include the lack of standards at multiple level and constituencies; the inability to assess DMP quality due to the absence of a definition of quality; inconsistency between submitted DMP to protocol submission responses; and considerations beyond the primary data collection to deidentified data and secondary uses of it. This study has two aims: to explore Canadian librarians and human ethics board chairs or officers’ experiences in data management plans (DMPs); and to solicit community input, using the research World Cafe method, for support direction to both REBs and librarian partners which would be reflective of the Canadian policy environment.
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